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Eve's Blog: Suviving FSGS & CKD

evelyneileencawley@yahoo.com

The Squeaky Wheel

Well, I’ve been out of work for almost a month. I thought in that time frame that my life was going to get LESS COMPLICATED.  I’m sooooo naive.

Not only has my protein levels rebounded and I’m back spilling and the medications don’t seem to be working, but now I have a new complication.

If you remember when Dr. Asshole put me on Cyclo back in September, my body reacted ferociously with diarrhea, nausea, vomiting….   food didn’t taste good anymore and I lost my appetite quickly. The longer I took the meds, after one or two bites, I’d feel sick and have to stop. If I forced it, then I would be throwing up.

About mid January, a new disturbing symptom emerged. It actually scared the HELL out of me because at first I thought I was having a heart attack. It was this incredible pain in my chest at the base of my breast bone and it radiated through my rib cage around into the center of my back. I couldn’t sleep. I couldn’t eat. I couldn’t concentrate on anything but the pain.

I didn’t know what to do. All of my doctors said it was the medications and my condition, that I needed to figure out what foods irritated it, made it worse, perhaps quit eating anything after 7 p.m.  Nothing helped.

Well in March, Dr. Asshole told me to go ahead and see a Colorectal Surgeon to have my hemrrhoids removed before my condition worsened. So I did.  The Surgeon suggested that I get a colonoscopy and a gastric endoscopy just to rule out complications from some other source. So…..two and a half weeks ago, I went in for both procedures simultaneously. Oh yeah.  Best sleep ever and the nurse got the IV on the first stick. Go Eve Go Eve Go Eve.  (laugh)

Well, during the procedure, the doctor found a couple of places in my stomach that were “iffy” so he took biopsies. I’ve been waiting over two weeks for these results. Well I got them today. First off, my septic tank of a colon is in great shape, but my stomach is not. I have a gnarly bacterial infection.

How the hell I got a bacterial infection in my stomach, I wish I knew. And it’s not the type of bacterial infection that causes e-coli or food poisoning. No, it’s the type that causes ulcers and stomach cancer.  Scary.  But it was caught and it’s treatable. It answers so many questions.

It seems though that everytime I complain of a pain or symptom, it’s not just a complaint. It always turns out to be something serious. I guess the Squeaky Wheel does get the Oil.

I got my first denial from Social Security, but I expected that. I go next week to see Dr. A again before I switch. I switched Primary Care providers so I can get a new Nephrologist. New ideas. New perspectives. Hopefully new treatment and progress.

https://en.wikipedia.org/wiki/Helicobacter_pylori