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Eve's Blog: Suviving FSGS & CKD

evelyneileencawley@yahoo.com

Today is the only day I'm worried about

So, I went to see my Nephrologist, Dr. Asshole today. My protein levels are awesome. Go Eve. Go Eve. Go Eve. He ok’d me to keep my medications where they are: 350mg Cyclosporine and 5 mg Prednisone, plus ALL the others I’m taking….Lisinopril, Synthroid, Caltrate, Fosamax, Vit C. Vit B-12. Red Yeast Rice, etc. etc. OMG I could go on and on.

Since my Pred levels are down to 5mg daily, I have days where I actually feel pretty fair. Not one foot in the grave, but not run the Boston Marathon either. I’m not exhausted all the time. My feet still hurt but not near as bad. My abdomen is still bloated, and my face is still pretty round, but who’s keeping score, right?  Don’t you dare answer that.

Dr A wants me to see a Gastroenterologist so I have to get a referral. Don’t panic. I have hemorrhoids (eye roll).  Stupid Cyclo.  He’ll probably order a Colonoscopy since I’ve never had one before, and of course, that will be right up Terry’s alley, or rather….my alley, if you know what I mean?   Frick-a-frack…

He said it would be best for me to have “them” (hemorrhoids) removed now, while I am able, “before my condition declines.”  Of course, that little statement sucked all the air from the room.  

YES, realistically, I know my condition is going to decline, but I don’t especially like dwelling on that tidbit.  Technically, the statistics are stacked against me, but I haven’t followed one stereotype yet. Why should I conform now?  The Cyclo is not going to be a long term alternative for me either. BUT…. I’m living for today. Not next week. Not next year…Today. I’m not guaranteed anything….

Poor Terry got defensive too. When we left the doctor’s office, he was all mad and pouty, trying his best to defend me, saying I was going to surprise everyone…. Ummm.. yeah, ok, honey. Go get ‘em. Tear ‘em up. God bless my husband, my defender.

Things are ok right now. I’m not going to wait for the other shoe to fall. I’m just going to enjoy my time.