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Eve's Blog: Suviving FSGS & CKD

evelyneileencawley@yahoo.com

Ticked Off

I’m ticked off and I’m not afraid to say it, LOUDLY!!!!

For those of you who know me, you know that I was diagnosed last year with FSGS.  Additionally, because of the awful side effects of the medication and the painful symptoms associated with this disease, I reluctantly left my job so I can better control the disease.  I’ve been out of work since March 28.

On my last day of work (Mar 28th), I did something I never thought I’d ever have to do….. I applied for Social Security Income benefits.  This was very hard for me to swallow. I felt guilty. I felt ashamed. I was embarrassed.

SSI simply assists people monthly as needed with bills, medical care etc. It’s not necessarily permanent and I felt secure in applying for temporary benefits. But because my husband is retired and makes more than $1,010 per month, I was denied assistance a few weeks after I applied.  Upon recieving my denial letter, I automatically applied for Disability.

Social Security Disability is generally permanent, basically declaring that you are no longer able to fulfill the duties and responsibilities of your job and some every day personal functions such as bathing, cooking, cleaning, driving, etc.

Basically, I am currently waiting for my denial letter. I expect it any day.

Here’s my peeve.  The Boston Bombers, the Tsarnaev brothers, their parents and the older boy’s wife were ALL on welfare, food stamps, medicaid – resulting in over $1 million in American taxpayers money.  It’s assistance that should be afforded to AMERICAN citizens not foreign, non American immigrants. I think if you want any kind of financial government assistance you have to become a U.S. citizen.

Also, I know of someone who works FULL TIME, who just bought a brand new car, sends her children to private school, has a husband/boyfriend living with her that works full time and makes more money than she does, yet she gets subsidized housing, welfare, WIC, food stamps, and has an $800 iPhone while dressing to the nine’s. And she brags about her government assistance like she’s entitled to it. Oh, by the way, this same woman’s mother, just so happens to work for the welfare office.  How convenient is that??????????

I know another lady that gets food stamps, but sells them to make additional money. She signs her kids up for free meals at school and they get low income financial assistance with after school programs like swimming and karate.  She plays poor mouth, always asking for free leftover food from the company luncheons.  She and her kids eat out almost every meal.  Here’s the real kicker….she made WAY more money than me.

I understand that everyone thinks they have hardships. I sympathize.  Really, I do.  But having the luxury to eat out every meal, buy a nice new car every few years, yet get food stamps and other government assistance is unacceptable. As a matter of fact, it makes me sick. There are people out there who truly need the assistance; however, they can’t get it because its going to people who are cheating the system.

My sister had terminal brain cancer and five kids to support and she was turned down three times before she finally got approved.

My father had terminal blood cancer, called Multiple Myeloma and he was turned down twice before he was approved.  Yet, there are people out there who are simply afraid to leave home and they get government assistance. Depression, they get assistance. Back pain, assistance. Obesity, assistance.

I know a woman whose only “illness” is being a hypocondriac and she gets a monthly check. WTH !!!! Then she works under the table for tax free income on the side.  She plays poor mouth too.  Whatever.

What gives these people the privilege of welfare and assistance that I am NOT afforded?  Why am I made to feel guilty for needing help?  Why do I feel ashamed like I am doing something wrong? I have paid into this damned system my entire life, since I was 15 years old.

What infuriates me even more is getting behind a lady in the check out line buying Lobster and Filet Mignon with an EBT card, yet she’s wearing Nike’s, Gucci sunglasses and carrying a designer purse, only to go outside and see her loading her FREE groceries into a new Cadillac.

Am I a prejudice person?  Absolutely not.

Does this make me sound prejudice? Probably.

Does this make me sound resentful or jealous? Most likely….but all I want to do is be able to pay my bills without having to pick up pennies in the parking lot or only buy items that I have a coupon for because we can’t afford to buy it any other way. Or simply go without.

Do I feel entitled? Hell no, but I also don’t think that I should have to pay into a system, I can’t gain access to. I think I’d like a refund of all the money I’ve donated t Medicaid, Medicare and Social Security over the last 25 years.

And lastly, I don’t believe FDR thought at the time (1936) that the Social Security Act or subsequent welfare system would go to shit like it did and its a shame it doesn’t provide the necessary assistance for which it was created.

For all of you out there abusing the system illegally, I publicly pray that Karma bites you square in the ass.